Go Team Elmo!

Elmo is a one-year-old little treasure, and our absolute hero. He was born 6 weeks prematurely and his blood sugars became so dangerously low after his birth that he suffered a brain injury.

FullSizeRender 2
£87089.09
Total raised
87 %
£100,000.00
Target
Donate Fundraise

99 donations

Recent donations

"For Go, Team Elmo Live (2 tickets)"
£30.00 from Jonathan Ho
"Wish you all the best and hope the ball is a great success."
£15.00 from Will Bancroft
-
£HIDDEN from Emma Cracknell
"For Go, Team Elmo Live (2 tickets)"
£6.00 from Stuart Walters
"For go team Elmo live "
£6.00 from Anonymous
"Go, Team Elmo Live! "
£6.00 from Jennifer Cross
-
£9.00 from Louise Moore
"What a lovely boy, and so lucky to have such loving and dedicated parents. Best wishes."
£50.00 from Richard Carr
-
£20.00 from Anonymous
-
£20.00 from Kirsty
-
£20.00 from Kate Grange
"Hi Sophie, It was lovely to hear from you...... I'm sending this with lots of love to you, Nick and your beautiful boys. Nikki xxxx"
£55.00 from Nikki
"Good luck Elmo and Sophie "
£425.36 from Snieguole&Sarunas
"Small donation for chrismas. Wishing you all a Merry Christmas and happy new year. So glad elmo is home with you this year. Your amazing. Keep doing what your doing xxx"
£HIDDEN from Holly, Dan & Amelia x x x
"Instead of sending xmas cards this year. Happy Xmas Elmo Sophie nick and Oliver x"
£50.00 from Anonymous
-
£17.12 from KAMS
"Get well!"
£85.58 from KAMS
-
£42.79 from Jason McGuinness
"Looking forward to seeing you all today at the christening . Keep fighting Elmo you are an inspiration to us all love great auntie phil"
£50.00 from Philomena Martin
"What a lovely family xx "
£30.00 from Cadi x
"All the best to Elmo"
£10.00 from Andy
"You survived! I am both relieved and amazed ;) "
£30.00 from clare & crumps
"Well done Team Elmo you all did so well :) x x x"
£15.00 from Sophie Brown
"Well done to you all!"
£15.00 from Steven Brown
"Supporting a great cause, from everyone at Forge Homes. "
£100.00 from Luke Robinson
"Great effort well done all"
£20.00 from Tom
"Well done guys!"
£10.00 from Sunny
"WELL DONE TEAM BEN NEV!!!! CAN'T WAIT TO HEAR ALL ABOUT IT. PIPSY"
£20.00 from PIPSY
"Well done for summiting!"
£20.00 from Laura and Richard
"So sorry I'm late to the party. I didn't know anything about this. I blame being in Cornwall and with no Wifi. Proper impressed you're doing this - well done and god love ya! xx"
£30.00 from Gavin Inskip
"Kirsty just showed me your video and I just had to donate my last £10 of my wages to such a special and amazing little boy. He is too cute xx Laura Denman"
£10.00 from Anonymous
-
£20.00 from Anonymous
"Good luck on the climb"
£50.00 from Dave the Diddy
"Hope it helps, thinking of you all, think you are all very brave!!! good luck xx"
£10.00 from Sue Drury
"You hav a very special boy. Good luck with your climb up Ben Nevis."
£HIDDEN from Michelle Docherty
-
£HIDDEN from Freddy & Steph Boone
-
£5.00 from Heloïse
"GO TEAM ELMO!!!! Please don't get lost on the mountain, we need you for B ball. XXXXX"
£25.00 from Nichole
"Good Luck"
£10.00 from Kay
"Good luck guys! xxx"
£20.00 from Solene
"Hi Hope, Good luck for the walk. I hope you smash your target for Elmo. "
£HIDDEN from Anneka
"Just keep walking Team Here! "
£50.00 from Caz & Lisa
"Fab cause babe!! Go team!"
£10.00 from Anonymous
-
£20.00 from Anonymous
"Good Luck, stay safe x"
£10.00 from Anonymous
"Good Luck"
£50.00 from Billy & Kara
"Good luck everyone! Stay warm!"
£30.00 from Richard Soares
"Love to iron man and your family mate..!"
£20.00 from Dickie Davis 😀
"Plod on."
£20.00 from Anonymous
"Good luck guys! Enjoy yourselves! x"
£50.00 from Kate & Mark
FullSizeRender 2

Elmo is a one-year-old little treasure, and our absolute hero. He has spent more time in hospital in his life so far than some people will in their entire lives. Although he has come very far from where he started, we are fundraising to try and provide him with the things he will need in order to develop to his full potential.

Elmo (Elliot) was born 6 weeks prematurely, and initially appeared perfectly healthy. He was a beautiful baby boy, but sadly his blood sugars became so dangerously low in the hours after his birth that he suffered a brain injury. He spent the first month of his little life in intensive care, and due to his poor muscle tone, he subsequently spent many months in an out of intensive care, and having to be ventilated due to severe respiratory infections. Many times in the first year of his life we were unsure if he would survive, as we were informed by Elliot’s neurologist that it was unlikely he would see his first birthday.

But Elliot has defied all odds. So far, he has proved the doctors and the specialists wrong and has truly come out on top. He is a real fighter, but it may be several years until we truly understand his prognosis. In the meantime, we will continue to fight for him, and try to optimise the opportunities he has to enjoy his life as much as he can.

Elmo has a cortical visual impairment, delayed development and has very low muscle tone….but he is a very strong-willed and determined little boy. He is not a fan of his twice-daily physiotherapy at home, nor his daily private therapy but he continues to surprise us with his grit and strength. Every day is a struggle for him, and us, but he overcomes every challenge that he has so far been faced with.

We hold on to the hope that every one of our dreams for him will come true, and with continued extensive therapies, stimulation and all the love that we can give, he will one day walk, talk and be the independent little boy we know he can be.

Support Elmo

There is no cure for a brain injury, but there are treatments and therapies that can reduce the impact the condition has on Elmo. In time, these may help him achieve some independence. Unfortunately, due to unavailable and limited resources, the NHS cannot support regular or intensive therapy for children like him. As a family, we self-fund weekly physio, occupational therapy, hippo therapy, CME, fortnightly visual therapy and speech and language therapy. In addition to this weekly schedule, we hope to soon provide him with intensive courses to aid him in achieving his development goals and reach some delayed (and previously thought unattainable!) milestones.

One of these courses is held at Kids Physio Works in Colchester, a leading institutions specialising in child neuro-rehabilitation. The biggest benefit for Elmo at Kids Physio Works is thersauit which is known to help improve muscle tone.

We also hope for Elmo to continue at Bobath, a centre for children with neurological disorders. They offer intense therapies that help stimulate and encourage development, increase self-esteem and help children like Elliot gain some imperative independence.

He would also benefit hugely from the input of the NAPA centre, who are travel from California to the UK to offer an IMOT programme (intensive model of therapy), an innovative child treatment program that is designed to help children meet their developmental milestones.

These, along with other therapies recommended for children like Elmo, are incredibly expensive and not financially viable for most families. Our fundraising efforts will hopefully enable Elmo to access these amazing facilities and have a better quality of life than what he would face without them. We are looking to raise enough funds for Just4Children to support Elliot’s intensive treatments over the next 36 months. We hope that we can arrange a trip to the Adeli centre, an intensive block of therapy with the NAPA centre and a block of treatment at Bobath and at Kids Physio Works in Colchester. We also hope to continue his weekly private physio, occupational therapy, speech and language therapy and CME therapy. All monies raised will contribute to the cost of these therapies, which we estimate will cost over £60,000.

Should we exceed our fundraising target, if we don’t raise enough funds, or if they can’t be used for any other reason, all money raised will go to Just4Children to help other poorly children.

Our Elmo is a joyful little chap who brings light and happiness to all those around him, especially his big brother Oliver! We know his journey will be difficult and we brace ourselves daily for an emotional rollercoaster of a ride through life with him, but please know one thing – every penny donated to his cause will be gratefully received and no matter how much, it will change the life of our gorgeous little man in a great way, forever.

Eliot is a gift to us. So let’s give him something back in return!
Let’s make for this extraordinary little boy a life as close to extraordinary as we can!

Thank you for reading our story.