All for Ava

Campaign for SDR operation at Great Ormond Street Hospital and follow up physiotherapy

£37526.80
Total raised
94 %
£40,000.00
Target
Donate Fundraise

182 donations

Recent donations

"Danny as I said before a great effort by all reading the story and talking to you my brothers and I would want you to meet your target so here it is hope all goes well and Ava gets the treatment "
£500.00 from Andy Darvall
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£30.00 from Diana Gouws
"Looks like you had a great event! Sorry I couldn't make it."
£25.00 from Paul H
"Well Done everyone. x"
£40.00 from Mary and Don O'Connor
"Well Done for doing the Colour Run"
£20.00 from Pricilla Daniel
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£30.00 from Emma
"Well done"
£20.00 from Darren
"Well done guys"
£50.00 from Jay
"To Team Ava"
£60.00 from Team Ava Run
"Well done Deb! "
£50.00 from Debbie Church
"Good luck with the treatment Ava."
£30.00 from Matilda
"Good luck Team Ava from work colleagues."
£110.00 from Danny Brosnan
"Good luck with the run on sunday and for Ava's treatment."
£25.00 from Kevin Veness
"Add some joy for Ava. Good luck everyone."
£HIDDEN from David
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£10.00 from Connie Cunningham
"Sharon and Adrian - good luck and enjoy!"
£HIDDEN from Nicki and Phoebe x
"Good luck Team Ava from work colleagues."
£147.00 from Danny Brosnan
"you can do it Danny!"
£20.00 from Kevdog
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£20.00 from Gary Kilkenny
"Dan & Mark. Good luck with the run."
£50.00 from Gary
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£31.00 from Resh & Tim
"Go Team Ava!"
£20.00 from David Allen
"Good luck guys, sorry I'm not there to run with you! Miss you all. Rose x"
£HIDDEN from Rose H
"Well done Danny !!!"
£20.00 from Dave Stacey
"Good Luck"
£20.00 from Keith Maskell
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£20.00 from Sarah Barnes
"Good Luck and all the Best! "
£20.00 from Russell Turner
"Best of luck"
£20.00 from Graham dEANS
"Good Luck To all "
£20.00 from Andy Darvall
"Good luck all"
£20.00 from Ben Langham
"Have a nice day"
£25.00 from Martin Mitchell
"Good luck Danny from Mem"
£20.00 from Mehmet Ali
"Keep plugging away with that training Danny."
£40.00 from Phillip Cornwall
"Wishing you the very best of luck Danny (and the rest of the team). I hope that you manage to raise the necessary funds for your little smiley Ava :)"
£30.00 from Steve Davies
"No second thought about this, a worthy cause."
£10.00 from Keith Phillips
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£10.00 from Jeff Gamble
"Good Luck on the run and all the best to Ava."
£30.00 from Mark D
"Worthy cause Danny good luck to you both."
£30.00 from Ray Garner
"Very best of luck!"
£10.00 from Glenn Wackett
"lots of steps; not the ones youre used too though"
£10.00 from Anonymous
"Good luck on the run"
£10.00 from scott sturton
"You have my full support and encourgment"
£20.00 from Ali Albadri
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£HIDDEN from Pat Andrews
"Hope you guys have a great time and raised the money needed. Have a great day!"
£20.00 from Samantha Raishbrook
"Good luck team. We all love Ava ❤ "
£10.00 from Silvia Bartolomei
"Sorry I can't be there to run with you. Good luck! x"
£HIDDEN from Jenny
"Good luck on the day and wishing all the best for Ava."
£20.00 from Jan
"Good luck and wishing all the best for Ava."
£HIDDEN from Gerry
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£25.00 from Sophie
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£30.00 from Anonymous

Ava from Kingsbury in London was born on the 9th April 2011 at 37 weeks by emergency c section. She remained in special care for 11 days due to breathing and feeding difficulties.

In the months following Ava’s birth it was noticed she was not achieving milestones and so she was seen by various medical practitioners. Ava could not sit up independently nor could she not roll or crawl and had very limited movement.

An MRI scan at 18 months confirmed Ava had Bilateral Spastic Cerebral Palsy. Ava made progress but it was clear as she became older she could not stand or walk independently due to the stiffness and tightness in her legs.

We became interested in finding out more about SDR (Selective Dorsal Rhizotomy). This operation is used to remove spasticity or stiffness in the legs. In April 2015 we were seen at Great Ormond Street Hospital where her needs were assessed. The team decided they wanted Ava to have botox injections as this would give a good indication of how she would respond to SDR.

The results were great! With reduced spasticity Ava was more confident and independent. When Ava returned to GOSH the team were very pleased with her progress and after consideration agreed Ava would be a great candidate for SDR surgery.

Unfortunately, there is no NHS funding for the operation and it will not be reviewed again until 2017. It is a monumental task but we need to raise £40,000 for Just4Children to pay for both the operation and the aftercare physiotherapy. We have been given a waiting time of 9-12 months for the surgery.

We truly believe that this operation will help Ava achieve her dream and be able to walk, run and dance with her friends.

If you can help in anyway it would be greatly appreciated.

Thank you

Mary and Danny