Ava from Kingsbury in London was born on the 9th April 2011 at 37 weeks by emergency c section. She remained in special care for 11 days due to breathing and feeding difficulties.
In the months following Ava’s birth it was noticed she was not achieving milestones and so she was seen by various medical practitioners. Ava could not sit up independently nor could she not roll or crawl and had very limited movement.
An MRI scan at 18 months confirmed Ava had Bilateral Spastic Cerebral Palsy. Ava made progress but it was clear as she became older she could not stand or walk independently due to the stiffness and tightness in her legs.
We became interested in finding out more about SDR (Selective Dorsal Rhizotomy). This operation is used to remove spasticity or stiffness in the legs. In April 2015 we were seen at Great Ormond Street Hospital where her needs were assessed. The team decided they wanted Ava to have botox injections as this would give a good indication of how she would respond to SDR.
The results were great! With reduced spasticity Ava was more confident and independent. When Ava returned to GOSH the team were very pleased with her progress and after consideration agreed Ava would be a great candidate for SDR surgery.
Unfortunately, there is no NHS funding for the operation and it will not be reviewed again until 2017. It is a monumental task but we need to raise £40,000 for Just4Children to pay for both the operation and the aftercare physiotherapy. We have been given a waiting time of 9-12 months for the surgery.
We truly believe that this operation will help Ava achieve her dream and be able to walk, run and dance with her friends.
If you can help in anyway it would be greatly appreciated.
Mary and Danny