Adventures with Mr Beau Jangles

Just4Children are raising funds for therapies and equipment that will help Beau reach his full potential.

Total raised
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119 donations

Recent donations

"Well done Luke!"
£20.00 from Anthony Capstick
"Well done lads!"
£50.00 from Gavin Allott
"good luck lads from a hatter COYH and all the best young lad"
£10.50 from rob
"Well done lads. Great effort."
£33.00 from Sharon Robinson
£11.00 from Anonymous
"Well done lads!"
£10.00 from Aunty Holly
£HIDDEN from Anonymous
£10.50 from Anonymous
£30.00 from Ian Robinson
"Awesome work Luke"
£33.00 from Gareth Newport
"Good luck mate, hope you reach your target x"
£33.00 from adam guest
"Good luck Luke! With love mum, dad, Ella and Grace xxxx"
£50.00 from Anonymous
"Good luck Luke!! Love Chanel x"
£11.00 from Anonymous
"Good luck Luke. Kel & Jon 💪 🏃‍♂️"
£10.00 from Kelly Wood
"Best of luck to both of you. Hope you got your target. Laura & TJ x"
£HIDDEN from Anonymous
"Good Luck Luke!! xx"
£11.00 from Joanne Cain
"Good luck Mark xxxx"
£10.00 from Jenny,Mick,Em n Ben Phillips
"Good luck Luke love Angie, Steve and Owen"
£15.00 from Anonymous
"Good luck to all! Especially Luke - use those long legs!"
£33.00 from Liz Ness
"Good Luck Luke 😄"
£22.00 from Adele Burton
"Good luck! Hi Beau!"
£11.00 from Sam Lloyd
"Good Luck Luke!"
£20.00 from Chris Foster
£33.00 from Anonymous
"Good luck!!"
£21.00 from Laura Bauling
"All the best Luke"
£20.00 from Anonymous
"Good luck Luke!"
£33.00 from Terri
£20.00 from Saiful Ali
"Good luck!"
£20.00 from Riz
"Just think, if you were shorter, how many extra steps you'd have to run!! You've got this!"
£20.00 from Nicole Tucker
"Best of luck Luke - sounds like a fantastic cause."
£20.00 from Jack Potter
£HIDDEN from Anonymous
"All the best mate. Great cause."
£22.00 from Liam Hastie
"Good luck, try to forget how far it is"
£30.00 from Richard Little
"Good Luck Luke!"
£11.00 from Laura Wilmot
"Good luck Luke!"
£11.00 from Flora Zhang
£22.00 from Stephen Wilkinson
"Best of luck Luke!"
£33.00 from Paul Clay
"Good luck Luke I'm in awe of you doing this!"
£50.00 from Christine Hewson
"Good luck Luke!"
£10.00 from Jade Selman
£10.00 from Shams Ali
£10.00 from Gina Bernhoeft
"Good luck Luke!"
£10.00 from Stephanie Day
"Best of luck Luke!"
£27.50 from Anonymous
"Best of luck mate, sounds like you are going to need it from the lack of training!"
£27.51 from Anthony Bolton
"Good luck Luke."
£10.00 from Anonymous
"Best of luck Luke!"
£43.78 from Christopher Roberts
£22.00 from George Strickland
"Good luck Luke Pam"
£6.00 from Anonymous
"Enjoy every 42,195 metres!"
£26.20 from Emma D
"Good luck Luke!"
£16.50 from Stephanie Hunter

Just4Children are raising funds for therapies and equipment that will help Beau reach his full potential.

This is our beautiful son Beau. At the 20 week scan it was noted that Beau had club feet but we were assured that this was easily correctable. Little did we know the actual extent of our boy’s issues were going to turn our world upside down.

Beau was breach, so a Csection was booked. It went smoothly and we were overjoyed when we found out our little girl had a brother. But I remember the midwife’s concern as I saw his legs. They were motionless and didn’t look right. She told me not to think about his legs and look at his beautiful face. I held on to that feeling of joy for as long as I could before the paediatrician took him away.

Beau was assessed and we were told it looked ‘syndromic’. He was born at 1.00pm and at 7.00pm it was noted that his right leg was broken in 2 places. He was taken from us and put on morphine and tube fed. The next day he was taken to Sheffield Children’s Hospital for tests.

Beau was born with a random genetic change in the gene DYNC1H1 which has caused polymicrogyria, arthrogryposis and a form of spinal muscular atrophy. We now follow the winding unfamiliar path of Special Needs, and so far, with a few bumps in the road here and there, we’ve managed quite well. The NHS have been brilliant but we now feel it’s time for something more.

So we need help to raise some funds for private therapies. As yet Beau cannot sit up without support and has no words but he’s a boy that is not to be underestimated. We’re hoping to develop his progress with Movement Lessons. We would like Beau to have some intensives with the UK ML practitioner and we hope to visit Arizona for a week’s intensive course.

We are also hoping to start Talk Tools speech therapy and have an assessment at Brainwaves.

Beau has already been through 4 surgeries and due to have a huge operation to construct a left hip socket. Beau is an awesome little dude who charms everyone he meets with his enormous eyes and even bigger smile. He has made great progress and surprises us regularly. He is loved by his sister and baby brother and loves them back. We really feel with these therapies he will make the progress he’s destined to.

Thank you

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