Posted On: 19th August 2017

Hero Daisy from is set for superhero challenge

A quadriplegic six-year old with cerebral is taking part in a superhero triathlon this weekend with support from her family. Daisy Mason from East Winch, near King’s Lynn, was born nearly 12 weeks early. She was diagnosed with cerebral palsy which means she needs a wheelchair because she has difficulty controlling her muscles or walking […]

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Posted On: 18th August 2017

Life-changing surgery takes youngsters closer to dream of being able to walk

Two children have undergone life-changing surgery which has taken them closer to achieving their dream of being able to walk. Little Nicole Vendettuoli and Ryan Weatherall were both born prematurely and diagnosed with spastic diplegia, a type of cerebral palsy. The painful condition, characterised by tightness in the legs, makes walking difficult and other everyday […]

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Posted On: 15th August 2017

Parents of Rosie back campaign by Daily Mirror to change organ donor laws

The parents of a girl who waited eight months for a heart transplant have backed a campaign to change the law on organ donations. Four-year-old Rosie Day, of Woodham Mortimer, was on the organ donor waiting list from December 2015 to July 2016 after she was diagnosed with heart muscle disease. A successful donor was […]

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Posted On: 14th August 2017

Mother’s sacrifice to give daughter ‘a chance at life’

A mother from South Tyneside is planning to forego medical treatment so that her daughter can ‘have a chance at life’ after they were both diagnosed with a rare genetic condition. Janine and Ellie Gray from East Boldon have a type of Ehlers-Danlos Syndromes – which in their case weakens the joints in the body […]

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Posted On: 08th August 2017

The Law must change!

‘Rosie’s life was saved by a heart transplant but it almost came too late – the law must change’ Sara and Barry Day were shocked to discover their daughter Rosie was not on the waiting list for a new organ because the youngster was not considered ill enough. It may not seem like Rosie Day […]

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Posted On: 03rd August 2017

Mum’s mission to help young son with rare condition learn to walk and talk

A single mum whose toddler cannot walk or talk due to a rare genetic condition is trying to raise £30,000 for special therapy for her son. Lucy Dunn’s son Louis, two and a half, was born with a congenital disorder of glycosylation (CDG) Type 1A which means he has a developmental delay and is unable […]

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Posted On: 02nd August 2017

Surgery fundraising for six-year-old Aiden

The father of a boy from Par has spoken about the challenges he has faced while fundraising for his 6-year-old son’s life-changing surgery which … Shortly after his birth, seven weeks premature and weighing only 2lb 7oz, Aiden Phillips was diagnosed with spastic diplegic cerebral palsy. The condition affects the muscles in the legs, which can mean children […]

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Posted On: 29th July 2017

Will my Jorja be the next Charlie Gard?

The father of a desperately sick baby says he fears she will die in hospital before he can get her the help she needs. Robbie Emerson and his wife Carly have been at the bedside of their daughter, Jorja, since July 12 and fear they are now on the same road as Charlie Gard’s parents […]

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Posted On: 28th July 2017

Cornish fire crews meet their young “hero”

Cornish firefighters have described a six-year-old boy who needs expensive surgery as their “hero”. Pirate FM told you little Aiden from Par, who has cerebral palsy, cannot walk without using a frame. The schoolboy needs a special operation which is not available on the NHS, after being born seven weeks premature. The trouble is, the […]

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Posted On: 28th July 2017

Just4Children is helping two-year-old go on respite holiday after his open heart surgery

Leighton Singleton was born three weeks prematurely, and was rushed straight into intensive care as he was in respiratory distress. Medics picked up on a heart murmur, and scans later showed he had two congenital heart defects which will need open heart surgery next year. Mum Zoe said he does not let this stop him […]

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Posted On: 27th July 2017

Housebuilder helps fund Scarlett’s Next Steps

A family is celebrating this week after receiving a £1,000 donation towards vital treatment for their young daughter. Scarlett Moore, who was diagnosed with cerebral palsy following a traumatic birth, has been gifted the money from Persimmon Homes East Scotland’s Community Champions scheme towards the cost of Advanced Biomedical Rehabilitation (ABR). Scarlett’s mother, Laura Moore said: […]

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Posted On: 26th July 2017

Parents fight to save baby with rare genetic disorder

The parents of a baby whose thought to be the only child with a rare chromosome disorder in Northern Ireland are planning to travel to England for a second medical opinion on their treatment options. Bangor infant Jorja Emerson is 17 months old and has 1q43q44 deletion syndrome, a rare chromosome disorder that has affected […]

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