Katie-Louise versus CP and Dystonia

We are raising funds for Just4Children to help Katie-Louise get to Scotland for ABR therapy that will hopefully ease some of the symptoms of her Cerebral Palsy and Dystonia.

katie-louise
£2345
Total raised
16 %
£15,000.00
Target
Donate Fundraise

41 donations

Recent donations

"Great effort Fiona proud of ya!"
£20.00 from Anonymous
"Good luck tomorrow! I hope Katie-Louise will enjoy the day out in Dublin and it will get her closer to Scotland."
£10.00 from Magda
"Good luck in the marathon Fiona"
£HIDDEN from Dave
"Good luck running buddy! Hope Katie-Louise enjoys her day supporting you :) "
£10.00 from Claire Nelson
"Derek and Fiona, hope you have a fab run on Sunday and raise the much needed funds needed for Katie-Louise's therapy"
£20.00 from Lynne, Colin, Sara and Tom
"Good luck."
£10.00 from Tom Beynon
"Have a great run and know it's for a great cause. You have a big heart . I only met you once but you made an impact me - so give it all have and show them what you can do ! "
£10.00 from Anonymous
"Good luck Derek!!"
£20.00 from Alana
"Best of luck on Sunday Derek! "
£HIDDEN from Anonymous
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£10.00 from Anonymous
"Good luck x "
£20.00 from Gillian wright
"Good Luck x "
£20.00 from Lyndsay x
"All the best 💪 😊 "
£10.00 from Anonymous
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£50.00 from Alfie welsh
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£10.00 from Sarah Sibbald
"Good luck for Dublin marathon Derek 👍"
£10.00 from Nichola Henderson
katie-louise

We are raising funds for Just4Children to help Katie-Louise get to Scotland for ABR therapy that will hopefully ease some of the symptoms of her Cerebral Palsy and Dystonia.

Katie-Louise is 1 1/2 years old and lives in Belfast, County Antrim. She was born ‘flat and floppy’ and due to a lack of oxygen required resuscitation. This led to her having Cerebral Palsy and Dystonia (involuntary muscle spasms). Katie-Louise is fed via a tube as her suck and swallow were not present after birth. In October 2016 she had a PEG tube fitted directly into her stomach and the NG tube was removed.

This has resulted in Katie-Louise being happier and does not have to go through the ordeal of the NG being replaced several times a week. Katie-Louise is learning to sit (though her Dystonia means she still requires some support) she is unable crawl, walk or talk which makes every day a struggle for her but has great determination to succeed.

Katie-Louise is fun loving, likes music, socialising and most of all love having all the attention on her. Seeing how she smiles and laughs when she’s trying to interact with other children is just amazing and provides a glimmer of hope for us that maybe one day we will be able to get her into a therapy that helps her do more things. Life is so frustrating for Katie-Louise as she cannot communicate her needs like most other children of her age.

ABR will help us to be able to give Katie-Louise a better quality of life. It promises to strengthen the muscular and skeletal structure of her body when used as a symptom of CP is an internal weakness.