We are trying to raise as much as we can for Just4Children to get Alexia to St Louis Hospital in America to have a SDR operation to enable her to lead a more mobile, better life.
Alexia-Rose from Weeley near Clacton on Sea in Essex was born at 28 weeks and 2 days weighing just 2lb 15oz. We spent 2 months in a special care baby unit and at under 5lb Alexia came home.
That’s when the problems started and Alexia kept stopping breathing. We ended up having to resuscitate her and in an ambulance we went back to hospital many times.
After lots of problems and Alexia not hitting any milestones at 8 months old we received the devastating news that Alexia had quadriplegic spastic cerebral palsy. We were told she would never walk or talk and we knew then we had to do all we could to help improve her life.
That’s when we found out about the SDR operation and that it could improve Alexia’s life in many ways, mainly to live pain free. She’s unable to sit unaided, stand or walk. We are hoping with the SDR and intense rehabilitation we can improve Alexia’s life no end.
Thank you for taking the time to read Alexia’s story.
Text ALEX02 £10 to 70070